disability – Michmutters
Categories
Sports

Concerns ‘the next national stars’ are being shut out of sporting clubs due to a lack of inclusivity for athletes with autism

Six-year-old Ava Renwood is an aspiring athlete with big dreams of a career in sport.

But her mum Ashleigh Brook fears her options are limited by the lack of inclusivity and understanding of athletes with autism.

The Brisbane mum said her daughter “lives and dies” for her weekly gymnastics, cheerleading and dance classes.

“Ava wakes up in the morning [at] like 7am, and it is ‘what gym classes do I have today?'” Ms Brook said.

After approaching local sport clubs to take her daughter to the next level in sport, Ms Brook was advised to send her to disability-only groups.

“It is great that they have a division for these athletes, but again, [it’s] not inclusive,” she said.

“[It’s] very like putting them in their own bubble.”

Mum Ashleigh and Ava smile
Ava’s mum Ashleigh Brook says there needs to be more inclusive clubs for children with disability.(ABC News: Mark Leonardi)

With Ava eager to compete with her peers, Ms Brook is unsure she can find an inclusive club next season.

“It is kind of one of those situations where I am questioning is there going to be somewhere,” Ms Brook said.

Sporting events for students of all abilities

Charlotte Kanowski holds her medal
Charlotte Kanowski with her medal after she won the Queensland School Sports triathlon’s multi-class autism without an intellectual disability category.(ABC News: Marton Dobras)

Fourteen-year-old Charlotte Kanowski is an accomplished triathlon, marathon and aquathon athlete.

She was also the first and only student to compete in Queensland School Sports triathlon’s multi-class autism without an intellectual disability category.

“I was proud of myself when I got the medal and finished the race,” Charlotte said.

Charlotte Kanowski competing.
Charlotte Kanowski competing in the Noosa triathlon.(Supplied)

Multi-class events allow students with disabilities to participate in an inclusive environment.

The events are currently offered in triathlon, cross country, swimming and track and field events.

The Department of Education said this year for the first time, students with autism can also compete in multi-class events in the Queensland School Sport State Swimming Championships and State Triathlon.

Charlotte’s mum Jessica Kanowski said creating inclusive sport environments is about implementing “reasonable adjustments”.

“I think having that multi-class does provide an opportunity for them to have a go, but in a comfortable setting,” she said.

“Ultimately, you would want it to be fully inclusive and all the kids going together and having a go.

“We need to be inclusive and allow access to all of our children so that they can reach their dreams.”

The Brisbane mum said she had been fortunate in finding inclusive sports for her daughter, but it had not come without its challenges.

“It can be tricky to find an instructor who is educated and knows what reasonable adjustments to put in place,” she said.

Charlotte Kanowski with her parents and little sister
Charlotte Kanowski with her parents and little sister – who all support her during her competitions.(ABC News: Marton Dobras)

Ms Kanowski said it was important for coaches to understand all children on the spectrum have different “sensory profiles.”

“It is a spectrum for that reason, they are all different,” she said.

“When [Charlotte] does have a moment or may have a meltdown, that it is normal for her.

“That’s her emotions bubbling over and that is how she expresses them, and it is part of being autistic.”

Seeing her daughter shine in competitions, fills Ms Kanowski with pride.

“Makes me feel like she is out there giving it a go, and I’m really proud of her,” she said.

Sporting clubs ‘fearful of the unknown’

The Special Olympics’ Queensland coordinator Kim Lawley said many sports clubs were “fearful of the unknown” around athletes with autism.

“Once you get them out on a track or a field or a court, they are an athlete, and they want to participate and train,” she said.

“It’s just breaking down those barriers and those fears of the unknown.”

She said many athletes with disabilities struggle to be accepted into sporting groups, including her own brother.

“There was no opportunity for my brother to play sport, so we made that happen for him [at the Special Olympics],” Ms Lawley said.

Kim smiles on an athletics track.
Special Olympics’ Kim Lawley says many athletes with autism struggle to be accepted into sporting groups.(ABC News: Sarah Richards)

She said the Special Olympics has helped create inclusive sporting opportunities for athletes with intellectual disabilities and autism, with her brother going on to play basketball and golf nationally.

“It is about education of coaches, it is inclusion, and it’s just reminding coaches anywhere in Australia, in the world that they are athletes,” she said.

National athlete leadership coordinator for Special Olympics Australia, Susie Bennett-Yeo, said she hoped one day athletes with intellectual disabilities and autism could be accepted and welcomed by any sports team.

“I would love to just see some of the athletes I know, just to be able to go along to their local basketball competition and say, ‘I’d like to play basketball’ and they go, ‘that’s great’,” she said .

‘The next national stars’ falling through the cracks

Australian Sports Commission spokesperson said it believed everyone should be able to participate in sport.

“It is important that sporting bodies, from local clubs through to national sporting organisations, reflect the diversity in the communities they are a part of,” a spokesperson said.

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Categories
Australia

Peter Dansie allowed to appeal against his conviction for murdering his wife who drowned in an Adelaide pond

Australia’s highest court has allowed a man found guilty of murdering his wife by pushing her wheelchair into a pond to appeal against his conviction.

Peter Rex Dansie, 73, was sentenced to life in prison for killing his wife, Helen Dansie, in Adelaide’s southern parklands.

Mrs Dansie drowned in a pond in Veale Gardens in April 2017.

Dansie lost a bid to appeal his conviction in South Australia’s Court of Criminal Appeal two years ago.

Today, two High Court judges dismissed Dansie’s application to appeal, but Justice Kevin Nicholson said he would have quashed the conviction as the evidence did not rule out the possibility that Mrs Dansie might have accidentally drowned.

“It would be dangerous in all the circumstances to allow the verdict of guilty of murder to stand,” Justice Nicholson said.

The High Court then granted Dansie’s application for special leave to appeal the majority decision of South Australia’s appeal court.

Helen Dansie smiling.
Helen Dansie drowned in a pond at Veale Gardens in Adelaide in 2017.(Supplied: SA Police)

The High Court unanimously found South Australia’s Court of Criminal Appeal misapplied the law and has allowed Dansie to appeal against his conviction.

The matter will be remitted to the South Australian Supreme Court for rehearing.

In allowing the appeal, the High Court said the Supreme Court needed “more than mere satisfaction” to prove guilt beyond reasonable doubt.

“The appellant argues that the majority (of the Court of Criminal Appeal) misinterpreted and misapplied the approach required to be taken,” the judgment said.

“The appellant’s argument is well founded.

“The appeal must be allowed.

“What each member of the Court of Criminal Appeal needed to do in order to apply the test … was to ask whether he was independently satisfied as a result of his own assessment of the whole of the evidence added at the trial that the only rational inference available on that evidence was that the appellant deliberately pushed the wheelchair into the pond with intent to drown his wife.”

Divers in Veale Park pond
Police divers searching evidence in the pond at Veale Gardens in 2017.(Supplied: ABC News)

Mrs Dansie’s son Grant said he was “massively disappointed” the appeal had been granted.

“It’s like a never-ending story,” he said.

Dansie previously lost appeal

When Dansie was sentenced to a non-parole period of 25 years two years ago, Justice David Lovell said Mrs Dansie’s murder was the “ultimate act of domestic violence” and described it as an “evil and despicable act”.

“This was a chilling, planned murder of a person whose only mistake was to trust you,” he said.

During the trial, prosecutors alleged Dansie murdered his wife because he regarded her as a cost burden.

Mrs Dansie, a former microbiologist, suffered a stroke in the 1990s that left her with long-term disabilities.

The court at the time heard she was on an indexed pension for life, a large portion of which Mr Dansie was entitled to as her full-time carer.

Justice Lovell established a “dual motive” for the murder—a deterioration in Dansie’s feelings for his wife and an interest in pursuing a sexual relationship with another woman overseas.

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Categories
Australia

Patients getting stuck at transitional accommodation for an average of six months, report finds

A review into transitional accommodation for people with disabilities who have been discharged from hospital has found some people are getting stuck at facilities almost permanently, amid reports from patients that they are receiving substandard care.

The State Government ordered a review of the Transition to Home facilities after multiple complaints, including the case of a man known as “Mr D” who was found by ambulance staff in squalid conditions with an infected wound.

Mr D was at a Hampstead facility that has since closed, but the remaining Transition to Home programs at The Repat and St Margaret’s Rehabilitation Hospital have also come under fire for a lack of care, with allegations clients have been left to soil themselves in their wheelchairs .

Last week, the ABC revealed multiple complaints from patients at the Repat Health Precinct, including allegations that patients were being left in their own faeces and had been given the incorrect doses of medication.

Originally designed to help NDIS clients stuck in hospital waiting for support to return home or to permanent accommodation, the independent report has found clients were being referred to the service without a discharge pathway, “resulting in clients being admitted whose length of stay in T2H will most likely to be static, long stay or permanent.”

A green and white ambulance with a blurred street behind it
A man known as Mr D was found by ambulance staff in squalid conditions with an infected wound.(ABC News: Che Chorley)

It found while the expected length of stay in a T2H facility was 90 days, the average length of stay was 207 days. As of June this year the longest stay was 536 days.

Staff and clients told the reviewers that in some cases clients were waiting on simple home modifications, but NDIS requirements to get three quotes, combined with the post COVID-19 market was leading to delays.

Major facility misunderstanding

The report found the centers were designed to operate as step-down facilities, but there were frequent misunderstandings with clients who expect ongoing hospital-level care, a situation exacerbated by their location in a hospital setting.

While both facilities were supposed to be a home-like environment, the report found they had significant limitations including shared rooms with just curtains to separate clients, a lack of storage, limited access to outdoor areas and a lack of amenities like kitchen and laundry facilities. .

The exterior of the Daw Park Repatriation Hospital's frontage
The “Robust Unit” at The Repat was singled out for particular criticism.(ABC News: Isabel Dayman)

The so-called “Robust Unit” at The Repat was singled out.

“The new Robust Units … are stark and confronting, and the current bright white color and fit out are unlikely to contribute to calming a person with challenging behaviour,” the report found.

It found St Margaret’s “arrangements are of a much higher standard, although a number of shared rooms impact client privacy and dignity”.

The facilities have already been subject to multiple investigations, including internal audits and an inquiry by the Health and Community Services Complaints Commissioner.

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Categories
Australia

Disability advocates call for better support for people in rural, regional and remote NSW

Pauline Follett has been struggling to get on the National Disability Insurance Scheme (NDIS) for three years and is “frustrated” with the health system.

The 54-year-old has been living with cerebral lupus for nearly 30 years and depends on her disability pension as her main source of income.

Lupus can damage nerves in the body through inflammation of nerves or the tissues surrounding them.

The condition affects Ms Follett’s balance, which makes it difficult for her to walk and do tasks such as cooking, cleaning and driving.

She lives by herself in Gol Gol, in far west New South Wales, and has limited support.

“It becomes very difficult when you become too unwell to stay in one’s home. You have to have support when you’re disabled,” Ms Follett said.

An older woman pouring a kettle in her kitchen with her walker in front of her.
Pauline Follett lives on the border between Victoria and New South Wales.(ABC NewsRichard Crabtree)

The first time she applied for NDIS, she said the assessors focused “on the wrong thing”, that she lives with osteoporosis rather than lupus.

The second time Ms Follett applied, she said she was told her specialists could do more for her.

The support she receives is from a local disability service provider, but only includes assistance with transportation and cleaning.

And that support is not guaranteed, as Ms Follett is reassessed for it every six weeks.

That has meant she has made nearly 30 applications over the past three years to maintain the help.

“It’s all up in the air, all the time … You’re not guaranteed, it’s very tiring,” she said.

“You have to be on the ball all the time, which is difficult when you’re ill.”

Uncertainty exacerbates condition

She likes living in her own home but without the right help, she believes she could be forced to leave and fears being unable to find stable aged care accommodation, which would put her at risk of homelessness.

An older woman standing with her walker outside her home.
Pauline Follett hopes to get NDIS support after being rejected twice.(ABC NewsRichard Crabtree)

“Item [aged care] is difficult to get here. It’s not as readily available to us, so to have something like that. It’d be very hard to access,” she said.

Ms Follett said the uncertainty of NDIS providing support had affected her mental health, which had taken a toll on her physically.

“I’m very stressed, and with my lupus, stress is something that exacerbates my condition, so it makes it worse,” she said.

Ms Follett is not alone in finding access to services difficult.

Calls on government to do more

Disability Advocacy NSW released The Aussie Battlers report to the ABC, detailing issues people living with disabilities face in rural, regional and remote (RRR) NSW.

It showed 61 per cent of cases in RRR areas had difficulties meeting evidence requirements due to limited accessibility of service providers.

In RRR NSW, 73 per cent of people reported their service accessibility as poor or very poor.

Disability Advocacy NSW policy officer Cherry Baylosis said the results were not surprising.

A close up of a woman with brown hair wearing a patterned shirt.
Cherry Baylosis contributed to The Aussie Battlers report.(ABC Broken Hill: Youssef Saudie)

“It is concerning when I confirmed these experiences persist despite some of the efforts that were made,” Dr Baylosis said.

She is calling on the government to involve people with disabilities in policymaking.

“At the very least to have consultations with people with disabilities who live in remote areas for better engagement and participation, and then developing considerations within policy based off that,” she said.

“I would like policy to take into consideration the complexities of people with disability living in regional, rural and remote areas to consider the complications — such as the cost of living with a disability.”

Delays from service providers

There are 750 NDIS recipients in far west New South Wales as of June 30, but far west NSW Disability Advocacy district manager Eveleen May said there would be a “lot more” people who were in need of assistance.

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Categories
Entertainment

I have prosthetic hands and it constantly surprises people

A few days ago, I visited a local pub with a girlfriend, and standing at the bar together we ordered two glasses of wine.

The bartender promptly placed two stemless glasses on the counter and began pouring.

“Sorry but do you have glasses with stems?” I asked.

Instantly his demeanor soured and after finding a boringly old-fashioned wine glass, he filled it up with an exaggerated look of disdain.

“Oh, I don’t want to be precious, but I have prosthetic hands and there’s no way I could pick up that glass without smashing it,” I said.

My girlfriend and I casually laughed at the situation before the necessary apologies began rolling in.

Perhaps I should have stated it up front and saved everyone from the whole judgment-turned-apology exercise, but the situation was a fast-paced transaction with no room for explanations.

But life is full of fast-paced exchanges between strangers. And in the split seconds we have to process what is going on, we humans seem to regularly squeeze in enormous amounts of expectation, judgment and criticism.

So why has our community become so uncomfortable with the unexpected?

I have used prosthetic hands every day since my amputations nine years ago.

They are quite amazing gadgets. Able to open and close and with their skin-coloured cosmetic covers, they look just like real hands. Nail polish and all.

posted , updated

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Categories
Australia

Karan Nagrani is using social media to raise awareness about the ‘spectrum of blindness’

What comes to mind when you think of blindness? Is it a person donning dark sunglasses, possibly with a cane, or a guide dog?

There are certainly people with vision loss who fit this bill, but for many others, their experience of blindness is not quite so black and white.

Karan Nagrani is legally blind, but if you passed him in the street it’s likely you wouldn’t know.

High angle of man looking up at the camera, holding his white cane pointing up to the sky.
Karan Nagrani wants people to know blindness affects people in many different ways.(Supplied: Karan Nagrani)

Diagnosed at the age of 11 with a degenerative genetic condition called retinitis pigmentosa, the now 36-year-old only has a fraction of his vision remaining.

“It starts off as night blindness and loss of side vision, and then the central [vision] starts to get affected,” Mr Nagrani said.

“When people look ahead, they see 180 degrees… I see less than three degrees, and at night, it’s completely black.”

From his home in the southern coastal city of Albany, Western Australia, Mr Nagrani has made it his mission to educate people on what he calls the “spectrum of blindness”.

“I think people have this misconception that if you’re blind, your eyes don’t look normal,” he said.

“I can still make eye contact because I can still see a little bit, so people get a little confused.”

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When meeting new people, Mr Nagrani said he often felt he had to “convince” them of his disability.

“I feel a sense of fear until I’ve convinced them that I have a disability because I don’t want to be called a fraud.

“That is the fear that people are going to say, ‘His eyes look normal, he’s making eye contact, I think he’s faking it’.”

Knowing there would come a day when he would lose his sight, he didn’t let his diagnosis determine him from pursuing his dream career.

“Growing up, I knew I was going to go blind, but I didn’t want to pick a career based on that … I wanted to live my life and do something that I enjoy,” he said.

“Being creative, I got into graphic design and filmmaking, and I did that for 14 years.

“I’m proud to say I had a really successful career in marketing that I had to give up because I can’t use laptops or computers anymore.”

He’s still got it

With the knowledge and skills gained from his career, Mr Nagrani is putting them to use by creating infographics and videos for social media using his smartphone.

“Growing up, I never saw any content that prepared me for what it is that I will or won’t see,” he said.

“Now, I’m using my graphic design skills while I still can create resources that other people are using.”

His Instagram account showcases a sense of humor that hasn’t happened totally by chance.

“Social media is all about entertainment… you can present serious information, within reason, in a fun manner.

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“Going by the responses that I get, it’s actually the entertaining, informative posts that are most engaging because people actually stop and read and comment.”

But not everyone on the internet has his positive energy.

“There’s always that one person who has something nasty to say,” he said.

“I remember putting up a post once where I showed people what it’s like to wake up with retinitis pigmentosa… one of the shots was on the balcony, showing the beautiful Albany landscape.

“Someone commented, ‘What a waste of such a beautiful view on someone like you’.

“I get those comments, but I actually think that’s a reflection on them, and I brush it off.”

Social stigma an obstacle

Blind people experience an extra layer of difficulty navigating day-to-day life because of social stigma, according to eye expert Professor William Morgan.

Often patients put in a lot of effort to appear “normal.”

“Many people will think they’re just normal people and get irritated and annoyed if they bump into them, for example, or take longer to sit down on a bus because they’re having to feel their way around the seat,” Professor Morgan , from the University of Western Australia and managing director of the Lions Eye Institute in Perth, said.

“I do get those comments from patients actually; that they put an enormous amount of effort into nullifying the disability as much as possible.”

Smiling man in a lab coat sits at a desk next to a microscope.
Professor William Morgan says more general awareness about blindness is needed.(Supplied: Lions Eye Institute)

Professor Morgan said services had improved dramatically for vision-impaired people in recent years, but there was still a way to go in regard to awareness.

“These people are putting a huge effort into mixing in society, and so increasing the tolerance [would help, as well as] an awareness of the different sorts of vision that you lose with these broad categories of diseases.”

For Mr Nagrani, sharing his personal experience online is about fostering acceptance for all forms of blindness.

“It makes me so happy to see people from across the globe message me, asking me if they can share my posts to raise awareness,” he said.

“I feel like even though I’ve had to give up my marketing career, I’m actually finding this more fruitful, in the sense that I feel like I’m really making a difference now.”

Man with vision assistance cane stands beside a car with beach in the background.
Karan Nagrani wants to challenge the stereotype of what a blind person “should look like.”(Supplied: Karan Nagrani)

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Categories
Australia

Plastic can be an essential accessibility tool for people with disabilities. What happens when we ban it?

As a person living with a physical disability, there are a few items I require to help me live an independent life.

Pre-prepared vegetables, ready meals and drinking straws — some of which are made of plastic — are absolutely essential for people like me.

I have limited use of my hands and this has made preparing and cooking meals a nightmare. Up until the end of last year I simply avoided cooking meals myself as the kitchen tools I needed weren’t suitable.

Since then I have slowly been building my confidence in the kitchen with the help of pre-cut ingredients. But I still feel a sense of regret and guilt loading my shopping basket up with pre-packaged items due to the cost and the amount of leftover plastic waste.

The reality is that plastic can be an essential accessibility tool.

It’s not just prepackaged food. Plastic single-use plastic straws are vital for people who cannot lift a glass to their mouth or have motor control, chewing or swallowing issues — and a lack of availability can cause enormous worry.

An uncomfortable trade-off

Craig Wallace, head of policy at Advocacy for Inclusion, says the ban on plastic straws introduces another layer of complexity into the lives of people with disability by requiring them to negotiate the availability of an item that they need to remain hydrated or to carry that item with them.

And while exemptions allow plastic straws to be supplied to people with medical conditions or disability are now in place in most states and territories, there is no requirement for plastic straws to be carried — meaning no guarantee they will be available. Paper straws are often not suitable as they lack the flexibility and durability of their plastic counterparts.

A man with a bald head, maroon tie and black suit with white shirt
Craig Wallace says a ban on plastic straws adds a layer of complexity to the lives of people with disability.(Supplied)

“We don’t ask people without disabilities to carry cups and saucers and eating implements when they go out to a restaurant. We shouldn’t be asking people with disabilities who need plastic straws to consume liquids to have to supply them themselves,” Wallace says.

It’s an uncomfortable trade-off against a small but highly affected group of people. And while the ban does include provisions for cafes and restaurants to stock straws, these exemptions are meaningless as venues are under no legal obligation to include them.

“We’re weighing the ability of disabled people to have a glass of water in a cafe without choking to death against harm caused by plastic straws,” Wallace says.

accessible living room

The pre-packaged food debate was in the spotlight last month when a consumer created a thread on Reddit condemning “dumb” and “lazy” shoppers for purchasing re-cut vegetables and contributing to plastic pollution. Included in the post was a photo of the range, — trays and bags of diced onion, sliced ​​spring onion, sliced ​​potato and pumpkin cubes.

Teresa Berbury has suffered from severe chronic pain for the past seven years and recently developed monoplegia with paralysis in one leg from a failed back surgery. As she lives on her own, maintaining an independent lifestyle can be both challenging and rewarding.

A woman in a pink hoodie looks through the fridge while sitting in a wheelchair.
For Teresa Burbery, maintaining an independent lifestyle is challenging but also rewarding.(Supplied)

“When preparing the food I’m again reaching above onto the bench as it is much higher than a wheelchair,” Berbury says. “With every reach [I’m] putting strain on my back injury… By the time I’ve eaten the pain levels have really kicked in… This would be my life every night if I didn’t have pre-packaged meals.”

Knowing her weekly food has been prepared, cooked and delivered helps Berbury to relax without triggering unnecessary waves of pain.

But she says there are times she feels that the items she needs to use in order to live independently is something many fail to understand.

“People may assume that because I’m sitting down on my wheelchair I’m perfectly comfortable and it might even look easier,” Berbury says.

“But when you break down what is actually involved and how limited your movements are while steering your chair, combined with each movement triggering pain, it’s something many people are unable to relate to.”

Korey Gunnis has also relied on frozen and ready meals through the NDIS in the past, but says they have been more difficult to obtain in recent times.

“As someone with cerebral palsy and an autoimmune condition, it made life a bit more easier for me at the end of the day, when I have more fatigue and pain.”

Gunnis says to simply label the use of pre-prepared foods as lazy misses the point.

“[It] comes from a place of ignorance, and whoever made that statement does not understand what it is like to live with a chronic illness and disability,” he argues.

a man in an orange striped shirt and beret stands in front of a valley filled with clouds and a sandstone escarpment behind it.
Korey Gunnis, who lives with cerebral palsy and an autoimmune condition, has relied on frozen and ready meals through the NDIS to make life a bit easier when he is juggling fatigue and pain.(Supplied)

The cost of living independently

Aside from the plastic waste, the costs of pre-prepared items can be twice or even three times the amount of buying ingredients individually.

And with the current cost of living crisis, prices are on the rise.

Disability advocate and appearance activist Carly Findlay believes the cost of essential, pre-prepared food items must change to be more accessible for people with special needs.

“The cost must [be taken on] by the big organizations which are using more plastic and creating more waste and fossil fuels than individual disabled people,” Findlay says. “Many disabled people live on or below the poverty line and are significantly unemployed or underemployed compared to the rest of the population. “

A woman with curly hair, wearing a bright dress and polka-dot leather jacket stands smiling in front of a blue velvet curtain.
Carly Findlay believes the cost of pre-packaged food, that can be life-changing for people with disabilities, is too high.(Supplied: Sam Biddle)

In 2018, the Australian Bureau of Statistics reported that the personal income of people with disability was $505 per week, less than half that of people without disability. People with disability were also more likely to live in households with a lower gross household income compared with people without disability. Among those whose household income was known, half lived in a household in the lowest two quintiles, more than twice the frequency of people without disability.

“Pre-prepared veggies and ready meals may be unaffordable for many disabled people. The disability tax — the cost disabled people pay for accessibility — is real, and this [prepackaged food] proves it,” Findlay says.

A cohesive outlook

Jane Bremmer is the campaign coordinator for Zero Waste Australia. Having a son with cerebral palsy, she understands how necessary some of the plastic wrapped food and utensil products are for people with disabilities.

“There is always going to be a need for semi-processed food for people with disabilities that need that support. And we have a duty of care to provide that in our society, so that we create a more level playing field for everybody,” Bremmer says.

“I don’t think it necessarily has to be plastic, but there may be many uses that are essential for people with all sorts of different abilities that need lightweight, easy packaging.”

Chopped food and vegetables, or processed meals, can be important for many different kinds of people.

Chopped up vegetables and salad leaves in a pre-packaged plastic bag sold in a supermarket
Chopped food and vegetables can be useful for many kinds of people. (www.woolworths.com.au)

“So we have to find safe packaging alternatives for that, or keep them as essential uses for people who really need them,” she says.

Teresa Berbury agrees, pointing out that she is always thinking about what can make life easier on her and the planet.

“I do everything I can to minimize my impact however where humans are suffering, any product or packaging that can make our lives healthier and significantly less painful must be protected from environmental bans,” she says. “With what I live with every day I absolutely deserve this help.”

Craig Wallace says the issue isn’t a matter of just prioritizing climate change. It’s a matter of not prioritizing justice for people who are affected.

“It is really appropriate to take into account the needs and requirements of people with disabilities as we implement pollution control measures,” he says.

The future is recyclable

For Jane Bremmer, the best outcome would be that the packaging industry redesigns their products so that they’re safe and cost effective for all. “It’s completely doable,” she says. “We just need the political and corporate motivation to make it happen.”

Australian companies such as Arnott’s, We Bar None and Vegan Dairy have all commenced changes to their packaging.

“I would love to see biodegradable packaging integrated into these food services. Even cardboard would minimize a lot of the plastic component to food packaging,” Berbury says.

woman holding up six energy bars
Victorian business We Bar None uses home-compostable packaging.(ABC Ballarat: Dominic Cansdale)

Some major supermarket chains have already introduced recyclable packaging into their ranges.

In 2018, We Bar None became the first Victorian business to use 100 per cent home compostable wrappers for its energy bars, and Vegan Dairy in 2020 began using 100 per cent home compostable vacuum seal bags and labels for their entire range of plant-based cheeses .

And Arnott’s has committed to transition the soft plastic used in all biscuit packaging from multi to mono-material, so it is fully recyclable, by the end of 2023.

“If pre-prepared veggies and ready meals are making life easier for other people, and not harming you, don’t hate on them,” says Carly Findlay. “Accessibility comes in many forms – and food accessibility is a human right.”

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Categories
Australia

Adelaide couple turns property into Joanna Life Skills Centre, refuge for vulnerable people

Carol Coleman had been dreaming for years when she stumbled on the rundown church campsite that is now the Joanna Life Skills Centre.

Her husband Rob was passing through the small farming area in South Australia’s Coonawarra region for work when he spotted it.

Once Carol saw it, their Adelaide life as they knew it changed forever.

“I was hysterical. All I could see was people in a safe place, warm in bed and with food in their mouths. And that was just so important to me,” Ms Coleman said.

“It wasn’t a choice. It was like this has been shown to us. We have to do it. We just have to do it.”

When they bought the site in 2017, its 12 buildings, with 42 bedrooms, had been vacant for two years and were in need of desperate repair.

It didn’t matter.

“When you’re working in mental health and you see the terrible situations that people are in, you look at a place like this and think ‘this place can make a big difference’,” Ms Coleman said.

Trees and grass surround a white building.
There are 12 buildings on the property including a recreation room, commercial kitchen, and seven housing blocks.(ABC South East S.A.: Bec Whetham)

“So we packed up and we’re here.”

Over the years, they’ve chipped away at renovations, getting the place up to a good living standard for the people with disabilities and mental health needs that come to stay.

The NDIS registered service looks after 15 people at any one time. Most visit for two weeks to “catch their breath”, while others have stayed 12 months.

While there, visitors help clean and look after the animals. They have the opportunity to learn life skills like cooking and changing a tire.

“The whole idea is that they can look after themselves at the end of it all,” Mr Coleman said.

“While they’re vulnerable, they can be here. And when they’re a little more settled, they can go elsewhere and enjoy their life.”

Two chairs with rugs on them sit by a window, a table with cosmetics and nail polish between them.
Carol has created a pamper room for visitors to relax in.(ABC South East S.A.: Bec Whetham)

Vision for the site

Carol Coleman isn’t afraid of vulnerable people. Before studying as a nurse, her mother’s trade de ella, she worked as a cleaner at Glenside Psychiatric Hospital in Adelaide.

“Back in the 80s, people were looked after really well,” Ms Coleman said.

“It was once people started to be moved out into the community that people really started to struggle.”

While some residents who went into homes received lifetime support, Ms Coleman said others didn’t.

A few guitars and drums sit on a carpeted floor next to a piano.
There’s lots to keep people busy at the center.(ABC South East S.A.: Bec Whetham)

“I remember one particular lady was placed in a house across the road from me. She only used the lounge room and the toilet because she was too scared to go into the other rooms,” Ms Coleman said.

“She was a paranoid schizophrenic.

“She ended up walking out in front of cars because she was so distressed.”

Ms Coleman doesn’t know where she ended up.

“It’s people like that you just want to wrap your arms around and go, ‘you can be safe here. You don’t have to be frightened anymore’,” Ms Coleman said.

“There are thousands of people in situations that it’s just cruel to them.

“It’s not something to look down on, it’s something to open people’s eyes and go, ‘How can we help?'”

A worn basketball court surrounded by lawn and gum trees.
The basketball court at Joanna Life Skills Centre.(ABC South East S.A.: Bec Whetham)

While the center may be Carol’s vision, Rob is just as involved.

His experience managing waste transfer systems for 45 years has been put to good use.

“I find managing people in local government is pretty much the same in managing people here,” Mr Coleman said.

“Everyone has problems. It’s about transferring those skills of dealing with people over to dealing with people on a day-by-day basis.”

Learning life skills

Molly is using the center to catch her breath after a tough divorce.

During her month there, she has enjoyed coloring in, playing puzzles, going to the recreation room, and feeding Rosie the lamb.

“I like it here. It’s much calmer,” Molly said.

“Being in Mount Gambier was so stressful, I was so stressed all the time. I just couldn’t cope. But being here, I love it.”

A woman in jeans and a hoodie sits on some grass patting a lamb.
Getting to know lamb Rosie has been one of the highlights of Molly’s stay.(ABC South East S.A.: Bec Whetham)

Lately, she’s been busy preparing for her first prom later this month. The Colemans are taking her from her.

“They encourage me not to give up on things. If I say I don’t want to, they say, ‘come on. You can do it’,” Molly said.

“They’re really sweet and kind and caring for me.”

Required to help look after the grounds, Molly has taken to her new responsibilities well.

“It’s all part of normal life. If they’re going to leave here and go and find their own place to live, they’ve got to be able to look after what they’ve got,” Mr Coleman said.

A woman wearing jeans and a hooded jumper holds a rake smiling.
Molly making herself useful.(ABC South East S.A.: Bec Whetham)

Five years in the making

The work on site continues. In five years, they’ve managed to renovate most of the accommodation — adapting 42 small bedrooms to fewer but larger rooms with more living spaces and wet areas.

“It’s taken us a long time. Two people can only work so fast. And then you have to have the funds to buy materials,” Ms Coleman said.

“It’s been a hard slog but it’s absolutely worth it.”

A man walks into a small weatherboard building on an overcast day.
Rob has turned an old school building on the site into a functioning gym. He just needs to clad the outside.(ABC South East S.A.: Bec Whetham)

They were able to fund the project early on by accommodating local meatworkers.

“We were contacted by Regional Development when we arrived,” Ms Coleman said.

“That was like a gift from heaven because they basically gave us the opportunity to establish the place. We housed probably 140 workers over two years.”

A horse stands eats at some grass.
Various animals call the center home.(ABC South East S.A.: Bec Whetham)

future hopes

The Colemans plan to keep adding facilities to the site — like a woodworking shed and community garden.

“The property’s huge. We have to use it,” Ms Coleman said.

Whilst clients can already access occupational therapist, dietitian and physiotherapist support at the center, the couple hopes for more services.

“In the future, it needs to be a one-stop-shop so that people have got all the support around them that they need,” Ms Coleman said.

“These people are humans, they’ve got a whole lot of needs. And it takes an army to fill those needs.”

A pool table and billiards table sit in a large hall with a TV and other games.
Those staying are encouraged to enjoy the recreation room.(ABC South East S.A.: Bec Whetham)

Having extra staff around is also crucial for lightening the couple’s load.

They have had just one day off in five years but it’s a price they’re willing to pay.

“This is our retirement,” Ms. Coleman said.

Mr Coleman said people tended to stay in contact after they left the centre.

“Carol often gets a couple of phone calls a day from past ones that have been here. And they just check in, say hello,” he said.

“Sometimes they might not be feeling that great. And a chat for five minutes is enough to keep them on track.”

A man and woman stand on a dirt road surrounded by trees, laughing.
Rob and Carol Coleman are committed to being here for the long haul.(ABC South East S.A.: Bec Whetham)

After the implications of renovations and COVID-19, the Colemans say they’re ready to take on more visitors.

“We’ve been under the radar for some time,” Ms Coleman said.

“For a place this big with so many opportunities, people need to know that we’re here.”

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Categories
Australia

Fears for safety of disabled student at Walgett Community College

There are fears for the safety of a severely disabled child after an application for him to bypass the town’s only high school due to student violence was rejected.

Walgett resident Xander McKenzie, 12, has hydrocephalus, a condition that means he is tube-fed, in a wheelchair and has a shunt in his brain.

His mother, Kylie McKenzie, formally asked him to stay at the local primary school for another year but the NSW Department of Education denied her application.

He is now required to start at Walgett Community College in 2023.

But Ms McKenzie said her son would be too vulnerable and said Xander’s therapists agreed.

“We’ve been to meetings here before and chairs and tables have come flying over from the second level,” Ms McKenzie said.

“He can’t get out of the way. One knock anywhere between his head and his stomach where he has a shunt place could be life-threatening.”

‘Let common sense prevail’

Walgett is a town already devoid of education options due to its isolated location, almost 300 kilometers away from the nearest inland city, Dubbo.

Zoning regulations dictate children can only attend either of two local primary schools and the only secondary school, which has been plagued with violence.

Ms McKenzie was informed Department of Education guidelines dictated her son had to move to the high school because of his age.

“The Department of Education looks at all disabled children the same,” she said.

A group of women surround a boy in a wheelchair in front of a fenced building
kylie mckenzie [C] says she fears for her son’s safety if he is forced to attend Walgett’s only high school.(ABC News: Olivia Ralph)

Ms McKenzie said it had taken years for Xander to get assistance with staff and modifications to which he now had access.

“We’d like to keep Xander where he is, where he’s happy,” she said.

“The education department has spent a fortune in the last 12 months on provisions at the primary school for him and now they’re telling us he can’t stay.”

She attended a protest during the NSW Education Minister Sarah Mitchell’s visit to Walgett yesterday after not receiving a response to requests for help.

“Let common sense prevail,” Ms. McKenzie said.

“He has a mental age of three years old.”

Big sister’s fears

Xander’s older sister Anicia left Walgett Community College last year after she was assaulted twice at the school, moving away from her family to attend school in central Queensland.

“As his sister who went through trauma here and suffers [poor] mental health from this school, I don’t want him — a vulnerable person with severe disabilities — to go to a school like this,” the 16-year-old said.

Three women stand in a circle talking on a sidewalk
NSW Education Minister Sarah Mitchell speaks to protesters outside Walgett Community College.(ABC News: Olivia Ralph)

“If there’s a fight and he’s near that fight and gets bumped, I might not have a brother anymore.

“I want the minister to listen to how terrible the school has gotten over the years.”

Meeting with the minister

Education Minister Sarah Mitchell met Xander and spoke with his family when they attended the protest in Walgett.

“It’s now about me going to see what other things can we put in place for Xander, how can we make sure he’s supported,” Ms Mitchell said.

“I’ve already given an undertaking to his family that I will come back to them and work with him to see what options we’ve got, so Xander can continue to have great opportunities and get that love and support that he so clearly has from his family and from his community.”

A boy in a wheelchair sitting next to a woman standing and smiling
Xander meets with Education Minister Sarah Mitchell.(Supplied: Kylie McKenzie)

She commended Anicia for advocating for her little brother.

“I was really impressed by how strong these young people were in their advocacy for their community, particularly in relation to Xander and to meet his sister, mother and grandmother,” she said.

“It was really wonderful for me to meet them and understand.”

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Categories
Entertainment

Beyoncé removes Kelis interpolation from new song Energy after complaints

Beyoncé’s new album Renaissance is at the center of another controversy.

Just days after the singer’s team announced an “ableist slur” would be removed from the lyrics to her song Heated, Beyoncé has removed an interpolation of Kelis’s song Milkshake from her song Energy.

In the original version of Energy, the popstar sang a series of “la”s to the tune of the 2003 R&B hit which led to Kelis’s fame.

In the updated version found on streaming platforms Spotify, Apple Music and Tidal, the series of “la”s has been removed.

On a fan-made account on Instagram, Kelis, under her username @bountyandfull, said: “My mind is blown too because of the disrespect and utter ignorance of all 3 parties involved is astounding.”

“Some of the people in this business have no soul or integrity and they have everyone fooled,” she wrote.

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One user who commented on the fan account’s post said a collaboration between Beyoncé and Kelis was what “the world really needs.”

Kelis responded to this, saying:

“It’s not a collab, it’s theft.”

Kelis was not credited as a writer of Energy because she is not officially a writer or producer of Milkshake.

Pharrell Williams and Chad Hugo, also known as The Neptunes, are the official composers and co-writers of the song.

Both Williams and Hugo were previously listed as composers on Beyoncé’s song Energy. But they were removed from the song’s listing on her website once the track was updated.

Writing her own post on Instagram, Kelis said the use of Milkshake was a “trigger” for her.

“There are bully’s (sic) and secrets and gangsters in this industry that smile and get away with it until someone says enough is enough,” she wrote.

On Tuesday, after the lyrics to Heated were changed, Monica Lewinsky, the activist and former White House intern who had an affair with then-US president Bill Clinton, tweeted a personal response to the news and included the hashtag #Partition.

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The hashtag is in reference to Beyoncé’s 2013 song Partition, which includes the lyric, “He Monica Lewinsky-ed all on my gown.”

This marks the second time Beyoncé has edited a track from her new album, which was released on July 29.

In Heated, the singer repeatedly uses a word which is considered a derogatory reference to the medical term spastic diplegia, a form of cerebral palsy.

In a statement to Insider, a representative said the lyric would be changed.

“The word, not used intentionally in a harmful way, will be replaced,” the statement said.

Beyoncé isn’t the only artist to come under fire for using the derogatory language.

In June, American singer Lizzo faced backlash for including the same word in her single Grrls.

The singer faced heavy criticism online, eventually leading to Lizzo changing the lyrics.

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